“But you don’t look sick”
As an invisibly disabled person inspired by a post called “13 Reasons Why “You Don’t Look Sick/Disabled!” Is Not A Compliment” by @soooyeahanyway, I just want to say that I cannot wait until I no longer have to hear about (and pay for) how I “don’t look sick”.
Take the disabled seats on the metro/bus for example.
I mean, nobody will EVER give up their seat on the metro for me and in fact, whenever I do manage to get a seat meant for the disabled (i.e., MEEEEEE) and I’m having a hard time, other visibly disabled or pregnant people will ask me to get up OR will stand near me and other ppl will give me the evil eye.
SO even if I really REALLY need the seat, I will give it up.
But believe me, I don’t do it without making sure EVERYONE in the car hears me gripe very loudly about how I actually AM disabled and need the goddamn seat and that invisibly disabled people actually do exist on this fucking planet and that if people REALLY cared about us disabled folks they’d give the visibly disabled person their seat, regardless of whether or not they’re in the seat “meant for” the disabled. Not that that will ever happen for me (the invisibly disabled), but I care about my fellow disabled folks and it’s not their fault that the world is this way.
The moral of this story?
No one (even the pregnant & visibly disabled!!!) should assume that ppl using the disabled seats are “abusing them” by using them without being sick/disabled. If someone you think isn’t disabled is in those seats, do all of us disabled folks a HUGE favour and STFU and let them sit there. I don’t care how healthy or abled you think they look! If they are using it, I’d rather risk that they don’t belong there then make someone move (or feel horrible) who needs the seat.
TL;DR - STFU & MOVE ON!!!!!!!!!!
PLS READ & BOOST!!!
I get this on the bus everyday. Because I struggle with mobility in my legs I’d much prefer to use the disabled seating. After all that’s what it’s there for. But I never do because I hate the judgemental looks I get.
Aw I totally know the feeling and I’m really sorry the world is this way. It’s definitely time to change that and let the ppl know that #InvisiblyDisabledPplExist.
This January I will actually be diving back into my hashtag/post-it note education campaign I started in early December about the existence of invisibly disabled people. As I said in my OP:
It’s time to make the INvisible VISIBLE by proudly and publicly talking about our experiences as invisibly disabled people.
Despite popular belief and community infrastructures, #InvisiblyDisabledPplExist. This ignorance and reduced community recognition and assistance can cause us lots of unnecessary difficulty, pain, and even death.
This means it’s time to start a movement to end the ignorance about what it “means” to be disabled.
Please use the hashtag #InvisiblyDisabledPplExist to not only make signs over public transit disabled seating and other areas, as mentioned in tweet 4 above.
We must also talk about our many many stories of being invisibly disabled in a world where the public doesn’t recognize our existence (like mine).
Please Tweet & Boost!!!
Here are two examples of what I’ve done so far (I still need to get better post-its & markers though):

